Utter Autism

September 19, 2011

Duct Tape for Life?

So this past week was rough.  It started out ok.  We were seeing more aggressive behaviors and much less calm from Monday on.   We know he ate part of a wall at one point and I discovered that a pizza dough I made used an illegal parmesan cheese.  He’d eaten that on Sunday and Monday. 

So ok, we fix that and we’re good.  Right?

Wrong.

We never quite got back to that good spot again the entire week.  We did ok but it wasn’t the same.  While he was coming down from tantrums faster than before the diet, we were still having tantrums all the sudden when we hadn’t had any for weeks.

Hmm.

Then Saturday and Sunday came.  And it was awful.  Right back to as if we never started the diet.  WHY?

We just don’t know.  We keep things Adrian can’t have locked up in a footlocker.  We did find that wide open on Saturday at around 11 am.  But despite the fact Adrian must have been in that room, we can’t see what, if anything, he took.  There were muffins, candy, chocolate chips, rolls and cereal all there, seemingly undisturbed. 

The only thing he could have taken that wouldn’t have been obvious was granola and cereal bars that were all thrown in a plastic grocery bag.   But then there would have been wrappers and we didn’t see any.  Granted, I didn’t go searching through the garbage.  I wish now I had.

Saturday was bad.  Sunday was worse.  Today the school had the worst episode they’ve seen since the start of the school year.  He came home with his shirt all ripped up from a rage – Hulk Hogan style.  He’s been crazy here since he got off the school bus two hours ago.  And all of that was with using all the meds. 

The worst part of it all is I just don’t understand why.  What’s different?  Is it something he consumed?  If so, what?  Could it be he got to something in that box and it’s just taking longer than the usual 24 hours to go through his system?   Could it be the dried pineapple that I was so happy he finally ate on Saturday and Sunday?  Is it something else in his diet that I messed up with?  Is it something he was eating before that he’s reacting to now?  Does it have nothing to do with food at all?!

At this point you could tell me it’s nothing more than the phase of the moon and I’d be happy.  I just want to know WHY.

The return of these behavior problems brings back all the old familiar stress.  I can feel it in my back and in my shoulders.  I’m listening to him carefully, trying my best to catch him before he goes over the cliff into total lack of control, waiting for the smash of a window, the banging on the wall, the yelp of a poor sibling who happened to be in the wrong place at the wrong time,  another broken appliance, another hole to fix, …

I’m sitting here with duct tape now, repairing the computer headphones he broke in a tantrum.  I’m covering every last inch with duct tape.  It’s the only way we can make them last.  Then I’ll duct tape a new set of ear buds for his music player because after months of abuse, he finally broke the last duct taped pair.

And I can’t help but wish that duct tape could fix all of this too.

September 16, 2011

More SCD Cooking

Filed under: Specific Carbohydrate Diet (SCD) — Carol @ 9:51 pm

Managed to churn out a few more recipes this week that were well received.

French Toast Sticks – I used the flatbread I made a few days ago.  It was sliced in half to make it very thin and cut it into rectangular strips.   Then I dipped it into a mixture of egg, coconut milk, vanilla,  honey and cinnamon.  My first try I used proportions typical for regular french toast.  This bread is much heavier though so I found I needed to increase the amount of honey and cinnamon to balance that out.  The end result was sufficiently sweet and tasty such that it did not require syrup… which is good since he can’t have it anyway.  I did melt a little butter for dipping on the side though 😉

Cheddar Crackers – After making the pizza crust this past week, it dawned on me that it was very cracker-ish.   So tweaked it for cheddar crackers.  SO yum!

2 cups almond flour

2 eggs

pinch of garlic powder

pinch of salt

1/2 cup – 3/4 cup shredded cheddar cheese

2-3 tsp. olive oil

Roll ’em out in batches.  Make them very thin between pieces of parchment, peel away the top parchment, cut into individual crackers with a pizza cutter and bake them up in a 400* oven.  The middle ones tend to be less crisp.  I liked them that way but you could make them all crispy like the edge ones by simply shifting the positions part way through baking.

Strawberry Cake – This diet can be expensive!  So whenever I flub or find a recipe is a flop, I always try to find a way to use what I’ve got to make something better.  Such was the case with strawberry fluff.  The kids all hated it.  Faced with a bunch of strawberry fluff, I decided to toss it in our favorite cake batter:

6 eggs
1 cup honey
1 tsp vanilla
3/4 cup coconut flour
1 tsp baking soda
1/2 tsp sea salt

plus the strawberry fluff, defrosted, of course.

My husband thought it was the best cake yet.  And surprisingly, it didn’t taste much like strawberry at all.

September 10, 2011

SCD: Today’s Baking

In the time it took my husband to prepare yummy pasta and shrimp in a lovely cream sauce for the rest of the family, I did my baking for Adrian’s SCD.  I made….

1.Peanut Butter Brownies (I double the recipe so I can use the whole 16 oz jar of peanut butter at once.  It bakes up perfect in my 9X9 silicone pan.)

2.Ginger Cookies (you can probably guess we didn’t roll and cut them out cause, yeah, I’m too lazy LOL)

3. Lemon cake  

6 eggs
1/4 cup lemon juice
1/2 cup honey
1 tsp vanilla
1/4 cup plain yogurt
3/4 cup coconut flour
1 tsp baking soda
1 tsp lemon extract
1/2 tsp sea salt

The recipe I derived this from is found here and is for orange cake.  We made it as orange cake a few times and it was good.  I was curious what it would taste like if I substituted lemon for the orange.  Answer?  Super yummy cake that everyone loves.  We tried that marshmallow frosting a couple of times and found it was too sweet for our tastes no matter how little honey we added.  The cake is better all on it’s own.

4. Flatbread

WET INGREDIENTS:
12 eggs
¾ C oil
¼ C coconut milk
1t lemon juice

DRY INGREDIENTS:
1 C coconut flour
1 C almond flour
1 t baking soda
1 t salt

I found this recipe here but it looks like the webpage has expired so I’m recording the recipe here in case it suddenly disappears.

That was my baking for the day.  We had the lemon cake for dessert.  Everything else was sliced and stocked in the freezer.  One more baking session tomorrow should leave me in good shape to start the week.

Meanwhile, we’ve gone 3 days now with no ’emergency’ behavior meds.  He’s been calm and happy. Even the doctor noticed the difference when Adrian was there for a checkup last week. I’m usually doing an octopus impression while speaking to the doctor, getting pinched and pushed all the while.  This time Adrian waited calmly for 30 minutes in a packed waiting room (not the norm for this doc but they all have bad days I guess) and then sat quietly while I spoke with the doctor.

Over the course of the summer, the teacher was happy if they could keep the aggressive behaviors to less than 4 per day.  It didn’t usually happen.  Adrian’s already had 3 days of school without any aggressive behaviors. 

The difference is huge.  So much so that my husband and I are just sorta waiting for something bad to happen.  To think that it can stay this good would be a dream come true.  As my husband puts it, we’re cautiously optimistic.  We don’t want to risk disappointment if the spell is somehow broken here at one point.

But that doesn’t mean I’m not going to enjoy every minute.  🙂

 

September 8, 2011

SCD: Adrian’s Menu

I’m officially letting the SCD steal my blog for a bit. Cause yeah, this is HUGE for us. 

So what does a picky eater eat on this no sugar, no starch, no grain, no processed food diet?  Here’s what Adrian’s had to eat over the past two days:

YESTERDAY

Breakfast: a ripe banana and a piece of Banana cake (Individual muffins are too much work!  I bake it in a cake pan instead.)

Lunch: two medium sized chicken burgers (ground chicken seasoned up a bit) and a piece of peanut butter brownie for dessert 

Snack: a box of organic raisins

Dinner: pizza made with homemade pizza sauce and shredded Colby

TODAY

Breakfast: a ripe banana and a piece of Banana bread (we just baked it in a loaf pan and skipped the topping this time around)

Lunch: a personal-sized pizza (“leftover” – made last night and put aside for today) and a piece of cinnamon cake for dessert 

Snack: a box of organic raisins

Dinner: pan fried pork chop (he wasn’t very hungry and didn’t eat much so we didn’t serve sides or dessert)

 

TIPS

Lunches: Since Adrian prefers hot meals for lunch I usually try to make extra when I cook dinner so he can take leftovers for lunch the next day.  With most foods this works out perfectly and saves me having to find something new for lunch each day.

Pizza Sauce: Canned tomatoes and commercial pizza sauces are a no-no as I understand it.  We used Pomi boxed tomato product instead.   I added some legal spices (salt, oregano, basil, garlic, etc.) and then froze it in individual portions in ziploc baggies.  This way I don’t have to make a whole new batch of pizza sauce each time I make pizza.  Just grab a baggie and defrost it!

Muffins: As I mentioned above, I’m terribly lazy when it comes to muffins.  It just takes too long to fill them each, bake multiple batches and hope they come out of that little cup.  I always toss my ‘muffin’ recipes into cake or bread pans.  I can fit more into the oven this way and it’s so much faster!  I slice each into individual portions before freezing the whole thing.  This allows me to control the portion sizes as well.  For breakfast you want a bigger piece and for snack you grab a smaller one.  You can’t do that with muffins 😛

 

September 6, 2011

SCD – Logistics of Starting the Diet

Adrian has always been a very picky eater.  He has sensory issues that make him unable to eat, smell or even look at certain foods.  For that reason alone, starting this diet presented many challenges for us.

I know that the book that details the diet suggests a ‘starting’ diet and I’m certain that many devoted followers would wag their fingers at me for skipping it with Adrian.  But, as with many things with autism, you do what you can.

Step One: The Ingredients

Before we officially started I began finding some of the more rare items we’d need…

  • almond flour
  • coconut flour
  • coconut milk
  • sugar free vanilla
  • recipes

I felt it was necessary to identify several meals, snacks and drinks he’d accept before beginning.  I was glad I did.  I thought  pancakes would be a big hit.  Turns out Adrian wanted nothing to do with a pancake that didn’t come with maple syrup – no matter how good the pancake was!  So instead we went with muffin/cake type recipes and found a few winners right off the bat.  I was able to stash away some things in the freezer so I’d always have something on hand when we began the diet.

Step Two: The Equipment

I’ve already explained that I’m not a baker.  I just don’t enjoy it at all.  So equipment that makes this whole process easier is key.  Some we already had and  others I bought just for the occasion.

  • parchment paper
  • silicone bakeware
  • my Kitchen Aid standing mixer
  • my Rival crock pot
  • a set of Ball wide mouth jars
  • lots of freezer bags

Step Three: The Method

I found I could make this whole thing much more tolerable by following one simple rule.  Never make just one thing!  Each time I step in the kitchen to cook for Adrian I always pack the oven and fill the freezer.  I’ll use mixer for one recipe, scrape it and immediately start the next.  I bake no less than 3 items at a time.  With all the ingredients and equipment already out, it takes hardly any extra time to simply throw an additional recipe or two in.   Everything goes to the freezer cut in individual portions so we constantly have a variety things to choose from.

 

September 5, 2011

Diet Update

We’ve been doing the Specific Carbohydrate Diet (SCD) with Adrian now for 3 weeks now. 

It’s been the best 3 weeks in … well, a very long time.   These behavioral problems with Adrian stem back a good year and a half, if not more.  I’ve spent the better part of those 18 months feeling very stressed and helpless.  Not much of what we tried really helped much. 

I think it’s working. 

It feels better and, as I said before, that’s really the only thing I can base my opinion on.  No matter how subjective it may be.

Within that first week we had far fewer outbursts.  He was calmer.  We were able to get into a daily rhythm that was productive and satisfying for us both. 

This diet does not remove his OCD behaviors.  But it did significantly help the OCD over food.  That makes me wonder if it never was OCD but actual hunger brought on by the overabundance of sugar and carbohydrates in his diet.  Duh!  That alone makes this diet worth continuing.  That was a HUGE point of frustration in my life.  Gone.

We’ve had a few opportunities at this point to gain further evidence that there is a true reaction to starches and sugars.  The first did not come from food at all.  Adrian ate the sheet rock from a hole he made in his wall. The next day was horrible. 

I didn’t make the connection at first but his behavior was so different from what it had been that I kept thinking on what might have made the difference.  A quick search on the internet brought to light that sheet rock has starch in it!  I filed that in the ‘sounds strange but maybe possible’ explanations.

The next bad spell was this past weekend.  Adrian was terribly, terribly out of control Saturday and Sunday.  He was full on punching me, pinching and also attacking my husband. He destroyed cardboard that’s hung on the walls, untouched,  for weeks now.   It was abosultely devistating and very, very scary.  And that was after tripling the medication we’d had been using while on the diet!

The behavior started Saturday around 11am.  We’d already made the decision to get pizza, a big diet no-no, on Sunday.  First, because it’s the one food I haven’t been able to reproduce to his standard and he misses it.   We also wanted to do a ‘test’ before we send him back to school on Wednesday to see if there was a reaction.  We got our answer.  Heck, yeah, there is!

But that still didn’t explain why he was also nuts on Saturday.  I racked my brain and finally realized this afternoon that we gave him bacon on Saturday morning!  It’s supposedly legal on SCD in small amounts on rare occasions.  But I bought the wrong kind.  It was higher in sugar than it should have been.   I figured it couldn’t matter that much.  I was soooo wrong.

That means that every bad episode we’ve had in the past 3 weeks can be accounted for by his consumption of something not legal on the diet.  Sceptics will have to bear with me.  Come live my life for a bit and then you’re welcome to tell me I’m dead wrong.

Today we went back to the strict diet and, over the course of the day, Adrian returned to his calm SCD self.  It was strange to watch.  He tried to speak again – something he’s been doing a lot of on this diet.  He wrote and typed out a couple of messages for me.  Peace slowly returned.

Numerous times this evening we hugged and I told him how glad I was that he was feeling better.  This diet doesn’t fix everything but it absolutely IS the light at the end of the tunnel.  It’s making life livable again.  Praise the Lord!

Create a free website or blog at WordPress.com.