Utter Autism

February 13, 2010

The New Normal

Slowly but surely we’re getting back to a new normal around here. 

Adrian is doing awesome with the PIC line in his arm.  It doesn’t seem to bother him a bit.  He doesn’t even look up from what he’s doing when I hook him up for the meds anymore.  I’ve gotten quite good at going through the procedure quickly and efficiently and I’m shifting the schedule for the meds to be a little less obtrusive in our day.

He is bothered by the cast but we’re getting around it.  I’m more comfortable leaving him alone for short bits of time having watched how cautious he is even when he does try to put pressure on the foot.  Ideally he wouldn’t do that at all, but all we can do is the best we can around here. 

Last night I actually left him alone upstairs in the bed asleep and got my first chance to relax at my desk in a week.  He’s still sleeping in our room for now but I can see that possibly changing if get his med schedule off nights and we can find ways to block him in his own bed.

He’s gotten quite good at zooming around the first floor in his wheelchair, even moving himself on and off the couch and going to the bathroom independently.   We set up a computer for him where he can just roll up to use it and with his chair moved out of the kitchen, eating is also a drive thru experience.

I’m still rather amazed things have gone as well as they have under the circumstances.  I’m still a bit tired and occasionally I think I may go out of my mind being attached to him 24/7 but then my wonderful husband steps in or the other kids offer to help.   Stealing a few hours to myself at night while he sleeps will go a long way towards making me feel like I have some freedom from being a mom and nurse too.

Yeah, the new normal isn’t so bad.  Only 5 weeks more of antibiotics to go 🙂

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